Wednesday, March 4, 2009

Checkup at SDMC

I have made a mistake.
I’m so regret I have actually chosen government hospital for Alfred checkup. They really disappoint me. People said government hospital has been improving but it doesn’t. Maybe in term of services, yes, but when it come to knowledge wise, the doctor are too young, barely even some of them are at my age or younger where I got to know from their name tag. The same questions were being thrown at us each time of our visit like : Why? How come? Any family members have the same condition? But my hubs suggest we should still be going to the government checkup since we have come so far with that hospital and most of Alfred medical records are with them. Should I or shouldn’t I? His next checkup with them is on May. I will have the time to consider.

I have opts for private hospital for Alfred checkup to look out for 2nd opinion. After getting medical report from the government hospital, I’m pursuing to my company doctor for recommendation. They recommended me to Dr. Choy, a genetic pediatrician at Sime Darby Medical Centre. The first visit was ok, he explained to me things I should know about dwarfism, a copy of note on dwarfism and few question about his breathing, his physical movements and etc. He will review him every 3 months to monitor his grow. I’m lucky because my company covered all medical expenses for Alfred. The not so lucky stuff was Alfred insurance coverage was rejected by 2 insurance companies. Well, we will try our very best to get Alfred cover with insurance, at least a fund plan for his future educations.

Last Saturday, Alfred had his 2nd checkup at SJMC with Dr. Choy. We rose concerned on Alfred tongue that creates an “M” shape. Old folks said children with “M” shape tongue will have difficulty in pronunciation but Dr. Choy said that we need to monitor when Alfred learn to talk more as he grew older. Apart of it, his running nose is getting worse when flu turned greenish. Dr. Choy given him medicine to control his flu, nasal drops and will be monitored for another 6 weeks. If the symptoms still persist, then Alfred will have to send to ENT for further investigation. The last concerned is his spine. We notice his spine is getting curvier when he sits but when he stands it seemed to be lessened. Dr. Choy worried that lumbar kyphosis might occur and he recommended us to Dr. Taayah, a consultant rehabilitation physician.
The appointment was fixed yesterday. We went to see Dr Taayah and we discover that she is a nice lady doctor. Alfred was asleep when it is his turn. We gave Alfred x-ray which he took when he was 5 months old. At that time, the kyphosis is seemed not appeared yet. Well, after 15 minutes of understanding Alfred situation, we have to interrupt Alfred sleep. Well, that boy did not cry when I wake him up but he cried out loudly when the doctor touches him. Later, Dr Taayah called up Dr Anthony from German, basically he is based in Singapore to help on analysis and evaluate on Alfred spine. Alfred cried even louder when Dr Anthony examined his spine till I can feel that he is shivering. Poor boy!! After several discussion and suggestion, Dr Anthony will have to bring his gadget to custom made a seating seat (sort like car seat as described) for Alfred body as his body is too small for a brace. But Alfred will be needing an x-ray before the custom made things proceed. I wasn’t so understand the seating seat concepts as far as I concerned. I wet through Tonya's blog and achondroplasia website but I don't find any explaination closer to that recommendation. Since I have no one to compare or check with, I will have to bear with that recommendation first. Dr. Anthony will bring example for us to view on the next appointment for more understanding. Dr. Taayah encourage us to let Alfred stand more and gave him lot of activities like swimming, assorted toys and thinks of something that we can help him to strengthen his muscle as his hand and legs which is rather soft as described by her. The next appointment will be on 24th March.

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